Cystic Fibrosis Foundation: Nebraska Chapter
About Cystic Fibrosis Foundation – Nebraska Chapter
Cystic Fibrosis Foundation works to cure cystic fibrosis (CF) and provide all people with CF the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.
Programs & Services Offered
The Cystic Fibrosis Foundation supports a wide range of innovative research programs to discover and develop new and effective CF therapies.
Compass program helps CF patients find the answers they need on any CF-related questions such as insurance and co-pay assistance, diagnostic testing and legal issues.
State-of-the-art diagnosis and treatment services are available at the accredited CF Care Center at Nebraska Medicine. Social workers and clinic coordinators are also available at the Care Center.
Community engagement, volunteer and advocacy opportunities are available, also referrals to CF family support groups.
The Cystic Fibrosis Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Did You Know?
272 people in Nebraska have cystic fibrosis.
More than 40,000 people in the U.S. are living with cystic fibrosis (more than 70,000 worldwide).
Approximately 1,000 new cases of CF are diagnosed each year.
More than 75 percent of people with CF are diagnosed by age 2.
More than half of the CF population is age 18 or older.
You Can Help
$25 helps support the CF Care Centers.
$65 helps fund the Compass program.
$100 provides funding for the mission of the Cystic Fibrosis Foundation.
Dollars at Work
More than 75 percent of people with CF are diagnosed by age 2.
More than half of the CF population is age 18 or older.
The current life expectancy for people with CF is now 56 years old
Contact Info
402-330-6164 | website | 2827 S. 88th St., Omaha, NE 68124